The situation seems similar to patients treated with Remdesivir for Covid. There are several lawsuits against Gilead moving through the courts. It seems very odd the hospital would intubate unless there was an obstruction. Hospitals have been incentivized to vent per Covid protocols. Could there be similar incentives for other health issues. I hope Autumn’s parents succeed in saving her. Please keep us posted.
This is Mary, a retired PICU RN of 38 years from GA.
What is Autumn’s official diagnosis now? Still unclear what the dialysis was for. I am guessing she is unvaxxed which is another reason they are being vindictive. Did the mom and dad say there were any nurses on staff that seemed sympathetic? Have they demanded an Ethics consult?
She can certainly be transferred even while on a vent. We sent kids to CHOA in Atlanta that were gravely ill and unstable and their team came to pick them up from our unit. Does she have medical insurance? Her parents need to find a hospital (preferably not in CA) that will accept her. Once CPS gets their claws into her case, this will be much harder to do, especially across state lines. They also need a lawyer ASAP. In the meantime, they should verbally express their intent to bring a lawsuit against the hospital. That will get the hierarchy scrambling.
Stew Peters was a big help when another family had similar issues. Perhaps reach out to him.
There's no need to know the diagnoses. It's clearly a "medical kidnapping." And definitely, express the intent to sue - over what? It doesn't matter. Threatening law suits is highly therapeutic.
And yes. Stew Peters was very helpful in getting patient Scott Quiner transferred from a Minnesota hospital to the Texas hospital, where he died the day after arrival- still on the ventilator. His family and Stew sure knew best.
Get Stew involved so he can dox more doctors and hospital staff, and encourage his unhinged followers to bombard the caregivers with phone calls and text messages. That way he can face even more criminal harassment and defamation charges (in addition to disorderly conduct during "domestic disturbances" and DUIs).
Not sure where I've expressed an intent to sue anyone? When the state comes in and threatens to take a child away from loving parents, whose only crime is questioning a hospital protocol and advocating for safer, less aggressive therapies, and when this same system performs medical interventions WITHOUT parental consent, that would impede the parents' ability to remove that child from an environment that is clearly causing them harm, what term would you use to describe it?
See where some comments appear indented beneath preceding comments?
Mary Suddath wrote, " In the meantime, they should verbally express their intent to bring a lawsuit against the hospital. That will get the hierarchy scrambling."
It might, but not in any sort of helpful way.
There's almost certainly no threat to "remove the child." It doesn't matter what I would call it. There's a legal term, and status for this type of situation.
I feel that the parents should most definitely be allowed to bring their child home to die (if she lasts that long).
"... to remove that child from an environment that is clearly causing them harm ... "
Clear to whom? You couldn't even describe what's going on with the child.
Clear to the rage-farming charity founder intent on soliciting donations and clients for her "consulting practice," and attracting clicks for affiliate links.
If I want to sound intelligent when I make a phone call to the hospital, medical kidnapping is not enough to say. I will come across as unhinged myself.
And I wasn’t talking about the patient named Quiner. I was talking about a baby that he helped with that had a good ending to the story.
Sorry about the tone. Too much caffeine today maybe.
Also, the assumption that parents know best how to treat critically ill children is absurd - and you know this from your years of experience. You've taken care of pediatric HUS patients. Do you think parents should manage care? Write the dialysis orders?
And without actually knowing anything about the case, trumpeting these allegations that the hospital/doctors/nurses are up to no good - have nefarious motivations - and should be harassed or worse - it is repugnant.
And this statement - " I am guessing she is unvaxxed which is another reason they are being vindictive." - It just exhibits your bizarre thinking.
Sorry, just one more comment. I was thinking unvaxxed because the parents wanted to do direct donation ( didn’t want her to get blood or blood products (albumen) from a vaxxed donor. That is a very legit concern and one that I have myself; so much so that I have amended my Advance Directive to say no blood or blood products in an emergency.
Vaccine or no vaccine - " ..... which is another reason they are being vindictive ..."
I guess that's how patient care works where you're from.
And human albumin is not isolated and prepared like PRBCs or platelets or FFP - directed albumin donation is not a thing - not unless something has changed significantly in the last few years. You know that also - or should.
Albumen and other proteins are carried through the bloodstream in plasma. For medical use, it is extracted from the plasma of DONORS and pasteurized. I thought we could have a rational discussion - clearly not.
I called and they connected me with security. Not sure how effective it was though because I didn’t really know what to say other than that the parent’s wishes should be followed and that there was a medical kidnapping. I told them that the public is aware. The guy wanted my name and I didn’t give it to him so he hung up on me.
The two patients with HUS that I cared for in my many years in the PICU both went to Atlanta and both died.
I was always the nurse that they would assign to difficult /needy families and so I could always see both sides. Often, families would confide in me and tell me things that they had told no one else during their admissions, not even the physicians. There were many times when the families were right about certain things and the doctors were not. I would always say things like, “If this were my child, I might consider asking for such and such or have you thought about what might happen if…..” and stare hard at the parents. I never had anybody that didn’t understand what I was trying to get across. In all 38 years, I could count on one hand the families that did not like me or want me to take care of their child, and literally I took care of thousands of them. I also had lots of dealings with DFCS, both at the hospital and in my years of volunteering, and I helped a lot of families navigate that system. Once you come to their attention, it is very hard to get them out of your life.
Also, for the reason I stated in the first post, I still have not called the hospital, and I have called many other times in the past about these types of situations.
Thank you for your opening sentence. I appreciate it. Our medical system is broken and highly dysfunctional. I trust very few providers now. I know how hospital hierarchy closes ranks when they are being confronted and threatened. I am pretty sure I know how this family is being treated, and I also know if I was their daughters’s nurse, they would have a secret ally behind the scenes offering support and encouragement.
Autumn has HUS from E. coli O157:H7, which produces Shiga-like toxin. HUS mortality is in the vicinity of 10%, though sometimes higher in this age group. Only 70%-85% recover renal function. About 10% of survivors will require hemodialysis for life.
"Per Autum’s mother Hope, they then began an aggressive swarm of medications including Lasix, Diarel, and Aminophalen ... "
All of that ICU nursing experience but you cannot spell the names of the medications that are supposedly being administered. Nor do you realize that some of the mother's claims do not make sense. Aminophylline "to force her kidneys to excrete more urine ... " Really?
You've "consulted" your RT who doesn't have access to the chart or patient.
The hospital's care is malicious. It's a medical kidnapping because they don't want to let the parents dictate care, and ensure death where now it is only a possibility.
"... each additional intervention causing greater harm than the last. ... " based upon your assessment of a situation you would not understand even if you had chart access.
So let's everyone FLOOD the hospital and ICU with harassing phone calls. Because that's certain to be helpful. And of course, BE SURE TO DONATE to Kimberly's charity.
Your Substack posts are chock full of affiliate links - to supplement slingers. Call them "Sovereign" something other. And don't forget to DONATE! FOR THE CHILDREN!
My gosh, with all I've seen in the last couple years, I'm still shocked at what is happening to Autumn. If I was in Northern California. I would join protests at the hospital in a heartbeat. As such, I plan to donate to Kimberly's organizations to do what I can and encourage others to do so. Thanks to Kimberly for your continued actions to spread the truth and save lives.
You come off as rude. Parents get hysterical when their children are ill and they don’t trust care providers.
I’ve been an RN for years and have worked closely with pediatrics patients and families. You have to work hard, explain the treatment plan in clear English, and be patient to build a family’s trust.
If you can’t be civil, just don’t comment. If you’re a physician or other health care professional and actually have some medical knowledge, share it.
The situation seems similar to patients treated with Remdesivir for Covid. There are several lawsuits against Gilead moving through the courts. It seems very odd the hospital would intubate unless there was an obstruction. Hospitals have been incentivized to vent per Covid protocols. Could there be similar incentives for other health issues. I hope Autumn’s parents succeed in saving her. Please keep us posted.
Hi Kim,
This is Mary, a retired PICU RN of 38 years from GA.
What is Autumn’s official diagnosis now? Still unclear what the dialysis was for. I am guessing she is unvaxxed which is another reason they are being vindictive. Did the mom and dad say there were any nurses on staff that seemed sympathetic? Have they demanded an Ethics consult?
She can certainly be transferred even while on a vent. We sent kids to CHOA in Atlanta that were gravely ill and unstable and their team came to pick them up from our unit. Does she have medical insurance? Her parents need to find a hospital (preferably not in CA) that will accept her. Once CPS gets their claws into her case, this will be much harder to do, especially across state lines. They also need a lawyer ASAP. In the meantime, they should verbally express their intent to bring a lawsuit against the hospital. That will get the hierarchy scrambling.
Stew Peters was a big help when another family had similar issues. Perhaps reach out to him.
God bless you for taking this on.
Mary
There's no need to know the diagnoses. It's clearly a "medical kidnapping." And definitely, express the intent to sue - over what? It doesn't matter. Threatening law suits is highly therapeutic.
And yes. Stew Peters was very helpful in getting patient Scott Quiner transferred from a Minnesota hospital to the Texas hospital, where he died the day after arrival- still on the ventilator. His family and Stew sure knew best.
Get Stew involved so he can dox more doctors and hospital staff, and encourage his unhinged followers to bombard the caregivers with phone calls and text messages. That way he can face even more criminal harassment and defamation charges (in addition to disorderly conduct during "domestic disturbances" and DUIs).
Not sure where I've expressed an intent to sue anyone? When the state comes in and threatens to take a child away from loving parents, whose only crime is questioning a hospital protocol and advocating for safer, less aggressive therapies, and when this same system performs medical interventions WITHOUT parental consent, that would impede the parents' ability to remove that child from an environment that is clearly causing them harm, what term would you use to describe it?
See where some comments appear indented beneath preceding comments?
Mary Suddath wrote, " In the meantime, they should verbally express their intent to bring a lawsuit against the hospital. That will get the hierarchy scrambling."
It might, but not in any sort of helpful way.
There's almost certainly no threat to "remove the child." It doesn't matter what I would call it. There's a legal term, and status for this type of situation.
I feel that the parents should most definitely be allowed to bring their child home to die (if she lasts that long).
"... to remove that child from an environment that is clearly causing them harm ... "
Clear to whom? You couldn't even describe what's going on with the child.
Clear to the rage-farming charity founder intent on soliciting donations and clients for her "consulting practice," and attracting clicks for affiliate links.
If I want to sound intelligent when I make a phone call to the hospital, medical kidnapping is not enough to say. I will come across as unhinged myself.
And I wasn’t talking about the patient named Quiner. I was talking about a baby that he helped with that had a good ending to the story.
Also, you sound angry.
Sorry about the tone. Too much caffeine today maybe.
Also, the assumption that parents know best how to treat critically ill children is absurd - and you know this from your years of experience. You've taken care of pediatric HUS patients. Do you think parents should manage care? Write the dialysis orders?
And without actually knowing anything about the case, trumpeting these allegations that the hospital/doctors/nurses are up to no good - have nefarious motivations - and should be harassed or worse - it is repugnant.
And this statement - " I am guessing she is unvaxxed which is another reason they are being vindictive." - It just exhibits your bizarre thinking.
Sorry, just one more comment. I was thinking unvaxxed because the parents wanted to do direct donation ( didn’t want her to get blood or blood products (albumen) from a vaxxed donor. That is a very legit concern and one that I have myself; so much so that I have amended my Advance Directive to say no blood or blood products in an emergency.
Vaccine or no vaccine - " ..... which is another reason they are being vindictive ..."
I guess that's how patient care works where you're from.
And human albumin is not isolated and prepared like PRBCs or platelets or FFP - directed albumin donation is not a thing - not unless something has changed significantly in the last few years. You know that also - or should.
Albumen and other proteins are carried through the bloodstream in plasma. For medical use, it is extracted from the plasma of DONORS and pasteurized. I thought we could have a rational discussion - clearly not.
I called... the phone number listed was ‘wrong’ so I reached Patient Services at 605-498-4847.
I’m a retired RN of over 40 years... this is CRIMINAL.. and I pray a legal team is also bought in ..
God Help this child & family!🙏
Thank you so much! I will correct the information we have.
I called and they connected me with security. Not sure how effective it was though because I didn’t really know what to say other than that the parent’s wishes should be followed and that there was a medical kidnapping. I told them that the public is aware. The guy wanted my name and I didn’t give it to him so he hung up on me.
Why wouldn't you give them your name?
The two patients with HUS that I cared for in my many years in the PICU both went to Atlanta and both died.
I was always the nurse that they would assign to difficult /needy families and so I could always see both sides. Often, families would confide in me and tell me things that they had told no one else during their admissions, not even the physicians. There were many times when the families were right about certain things and the doctors were not. I would always say things like, “If this were my child, I might consider asking for such and such or have you thought about what might happen if…..” and stare hard at the parents. I never had anybody that didn’t understand what I was trying to get across. In all 38 years, I could count on one hand the families that did not like me or want me to take care of their child, and literally I took care of thousands of them. I also had lots of dealings with DFCS, both at the hospital and in my years of volunteering, and I helped a lot of families navigate that system. Once you come to their attention, it is very hard to get them out of your life.
Also, for the reason I stated in the first post, I still have not called the hospital, and I have called many other times in the past about these types of situations.
Thank you for your opening sentence. I appreciate it. Our medical system is broken and highly dysfunctional. I trust very few providers now. I know how hospital hierarchy closes ranks when they are being confronted and threatened. I am pretty sure I know how this family is being treated, and I also know if I was their daughters’s nurse, they would have a secret ally behind the scenes offering support and encouragement.
What you are doing here is shameful.
How so?
Autumn has HUS from E. coli O157:H7, which produces Shiga-like toxin. HUS mortality is in the vicinity of 10%, though sometimes higher in this age group. Only 70%-85% recover renal function. About 10% of survivors will require hemodialysis for life.
"Per Autum’s mother Hope, they then began an aggressive swarm of medications including Lasix, Diarel, and Aminophalen ... "
All of that ICU nursing experience but you cannot spell the names of the medications that are supposedly being administered. Nor do you realize that some of the mother's claims do not make sense. Aminophylline "to force her kidneys to excrete more urine ... " Really?
You've "consulted" your RT who doesn't have access to the chart or patient.
The hospital's care is malicious. It's a medical kidnapping because they don't want to let the parents dictate care, and ensure death where now it is only a possibility.
"... each additional intervention causing greater harm than the last. ... " based upon your assessment of a situation you would not understand even if you had chart access.
So let's everyone FLOOD the hospital and ICU with harassing phone calls. Because that's certain to be helpful. And of course, BE SURE TO DONATE to Kimberly's charity.
Your Substack posts are chock full of affiliate links - to supplement slingers. Call them "Sovereign" something other. And don't forget to DONATE! FOR THE CHILDREN!
My gosh, with all I've seen in the last couple years, I'm still shocked at what is happening to Autumn. If I was in Northern California. I would join protests at the hospital in a heartbeat. As such, I plan to donate to Kimberly's organizations to do what I can and encourage others to do so. Thanks to Kimberly for your continued actions to spread the truth and save lives.
There are no protests at the hospital (her parents' hysterics aside).
You come off as rude. Parents get hysterical when their children are ill and they don’t trust care providers.
I’ve been an RN for years and have worked closely with pediatrics patients and families. You have to work hard, explain the treatment plan in clear English, and be patient to build a family’s trust.
If you can’t be civil, just don’t comment. If you’re a physician or other health care professional and actually have some medical knowledge, share it.